Complex Regional Pain Syndrome Patients Social Media

Checking in

This post originally appeared on Reddit: CRPS group.

Hey all

Everyone has been so supportive to me here, even if I have been so sad or in pain to reply. I hope everyone is …as well as we can be given our circumstances.

How is everyone’s immune system acting?

Mine is 🙄🙄🙄🙄🙄 more so than usual. I was very sick in February that turned to pneumonia in March and I swear every 3 days I have a fully stuffed nose and a sore throat..I’m congested.

And I was hardly leaving the house before quarantine because of my pain. I really only left for doctors appointments. I’m sure a lot of people can relate to that part.

Is anyone frustrated about not being able to see their doctors? I mean mine feel useless but my pain doctor left the clinic so I spoke to one on the phone and it was such a incomplete experience. I mean they brush me off in person so you can imagine how a phone appointment was. I kind of wanted to dry nerve blocks again…. physical therapy. I wanted to try and swim to help the pain. I wanted to try so much. My diagnosis is 5 months in. Now I have even less of a reason to move around ….idk. 🤦🏽‍♀️

But don’t get me wrong. I’m about people keeping their lives over the fucking economy. But hopefully you all understand what I mean.

Anyway…my 2:35 am haven’t slept in days, in pain, can’t get comfortable thoughts lol 🤍

submitted by /u/Realsadgirl
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This post originally appeared on Reddit: CRPS group.

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