Complex Regional Pain Syndrome Video

Barry M. Wein Tells His CRPS Story

Barry M. Wein, MSW (He/Him) is a writer, storyteller, advocate and ally. For more than 20 years, he has helped good causes share their stories, so they can do even more good in the world. These days, Barry feels compelled to share his own stories because they simply demand to be told.

His voice is strikingly direct, honest, and intimate. Yet, he has an uncanny knack for finding a laugh even during life’s most challenging times. He finds it to be extremely empowering and encourages others to try it too. Barry seeks to create special moments of connection with fellow Warriors through his writing.

He understands those with CRPS are as unique as snowflakes, but likely share many common experiences as well. He hopes his writing will also touch the hearts, minds and funny bones of the general public.

This video captures Barry presenting his first CRPS story, “Consumed by Flames”, at a benefit held recently for the Madison Reading Project, a nonprofit organization that promotes literacy to underserved children where he lives in Madison, Wisconsin.

Before taking the stage, he had just learned that his CRPS had spread from his right hand and arm to his left.

If you would like to reach out to Barry, please send him an email at

To learn more about complex regional pain syndrome (CRPS) and reflex sympathetic dystrophy (RSD), visit Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)’s website at